Meet the face
behind the posts

Hello, I'm Sarah. I am living with a rare disease called Vulvar Lymphangioma, but it won't stop me from living my life to the fullest. I  am looking for more treatment options because I refuse to accept that surgery every six months is my only option. Follow my journey as I search for doctors, new treatments, and, hopefully, one day, a cure. There will be highs and lows along the way, but life is beautiful! I share my journey to raise awareness for those with a rare disease. I share the ups and downs because real life is messy, and treatment and finding a cure are not linear. 

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I currently live in Nebraska and Work full-time as an Early Childhood and Development Center's Nutrition Director. I am also a graduate student working towards a Master's degree in Clinical Mental Health Counseling. I have a Rhodesian Ridgeback named Taz and a very large red-eared slider turtle named Nibbles.